Author: admin
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Higher education postcard: the university court
We’re in Aberystwyth again this week, but not for an in-depth look at the university – we’ve done that before.
Instead, we’re going to look into an aspect of old university governance, with an Aberystwyth artefact. This is a draft report to the University Court of Governors.
The older, chartered universities in the UK (which means, broadly, those founded between 1800 and 1992) tended to have three bodies involved in governance:
- A senate, which was the academic decision-making body of the university, comprising all or some of the university’s academic staff
- A council, which was the governing body of the university, but which couldn’t take a decision on an academic matter without first consulting the senate
- A court, made up of stakeholders (ie graduates, local bigwigs, learned society representatives), which had very few if any powers, but to which council must account for itself and its activities.
Typically speaking, a court would meet once a year. Its powers might include appointing the chancellor of the university, but that is a ceremonial role, so is a very limited practical power (although one over which universities occasionally trip up). And at the annual meeting, there would be reports from the vice chancellor, and questions, and then that would be it for another year.
Now, this report is from a college of the University of Wales, which was a federal university. This means I’m not clear whether the report was to the court of the University College of Wales Aberystwyth, or to the court of the federal University of Wales. But either way, it gives a fascinating snapshot of what accountability looked like in 1920. (And if you know about the governance of the University of Wales in 1920, please do say in the comments below!)
The report would have been the first under the principalship of John Humphreys Davies, pictured here.
Davies was an alumnus of Aberystwyth; he succeeded Thomas Francis Roberts, who had been principal from 1891 to 1919, and had died in August of that year whilst still principal. He had since 1905 been registrar of University College Aberystwyth, making him another rare example of progression from senior professional service roles to institutional leadership.
The report starts with a brief statistical summary. It shows the impact of the first world war on numbers: there were 298 students in 1917–18; 410 in 1918–19, and 971 in 1919–20. About 30 per cent of the students were women; over 70 per cent came from south Wales; over 15 per cent from north Wales; over 10 per cent from England. And the remainder – nineteen students in total – came from Egypt, Scotland, Ireland, Belgium, France, India, Java, Jamaica and an unexpectedly large contingent – ten students – from Serbia.
There’s then a report on degree examinations, recording each student who had taken degree examinations, for bachelor of arts, master of arts, and certificates of education. I haven’t counted the names, but they stretch for fifteen pages of the report, so it looks like all of the students at the college. Jones is the most frequent name, with 60 in the faculty of arts, three in law, 31 in science, and two for the certificate in education. And we also get a report on alumni who had gained degrees from the University of London, or gained scholarships at Oxford.
And then the fun starts. Written reports from every department, starting with Greek, ending with the Officer Training Corps Contingent. Here are a few extracts:
Mr Jenkins, Greek: ‘Special: only two students took the course. Of these, Mr Neil Evans more than maintained his promise of the preceding session and attained a high standard in the examinations. As he intends to take Latin Honours in 1921, it may not be possible for him next session to devote to Greek as much time as he would wish, but if he can defer Greek honours till 1922, there is every prospect of his attaining a high class. The other candidate, Miss Young Evans, also did quite well, and showed improvement on the work of 1919.’
We have become much more squeamish about naming individuals in formal papers, even when praising them, or damning them with faint praise. Poor Miss Young Evans.
Professor Atkins, English: ‘The work this session has on the whole been satisfactory, though difficulties have not been wanting, owing to the large increase in the number of students and the varying ability of the ex-service students to settle down to serious study…’
Demobilisation was clearly not without its downsides.
We also get a fascinating insight into examination success rates. Here’s the data for undergraduate exams in English:
By my reckoning, this is a pass rate about 72 per cent for intermediate, 58 per cent for ordinary and 64 per cent for special levels. What would we make of these rates today?
We learn that the library received gifts including 600 volumes from the library of the late Principal Thomas Francis Roberts; the review of the Aberdeen Angus Cattle Society; the proceedings of the Royal Irish Academy in Dublin; and the report of the Association of Headmistresses in London. And, excitingly, that Miss Cummings of the Bodleian Library in Oxford has been appointed cataloguer to classify and catalogue the library’s holdings “in accordance with the rules of the Library of Congress.”
We have the first report from Professor Zimmern, the founding chair of international politics at Aberystwyth, a subject in which the college was to gain much renown.
And let’s end this set of extracts with this, about the Normal College’s music students. (You’ll remember that the Normal College, in Bangor, focused on teacher training.)
Apathy, irregularity and a lack of preparation. A sad and sorry state of affairs. I wonder if it was ever thus?
Overall I’m struck by the level of detail and the minutiae in the report. There’s a flavour of what life must have been like at Aberystwyth, and an openness to accountability which is interesting. Maybe it’s a genuine transparency, maybe it’s a desire to hide big issues behind the day-to-day. Anyway, I hope you enjoyed it.
I’ve got two jigsaws for you today. First the postcard at the top; and then a double page spread from the report, just for the sheer fun of it.
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Podcast: New leaders, gen-AI, visas
This week on the podcast UK Research and Innovation and the Office for Students both have new leadership – but what does that mean for the future of regulation, research funding, and sector confidence?
Meanwhile, a new report reveals a dramatic rise in student use of generative AI, and as speculation swirls over potential changes to post-study work visas, the sector braces for further uncertainty in international student recruitment.
With Mark Bennett, Director (Audience & Insight) at FindAUniversity, Sarah Cowan, Head of Policy (Higher Education and Research) at the British Academy, Michael Salmon, News Editor at Wonkhe, and presented by Mark Leach, Editor-in-Chief at Wonkhe.
Read more
Preferred candidate to lead Office for Students confirmed
The UK-Ukraine 100 year partnership and its commitment to educational leadership
Boom and bust – but still whopping
The Home Office has its eyes on post-study work numbers
HEPI/Kortext AI survey shows explosive increase in the use of generative AI tools by students
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Supporting higher education’s emerging leaders
In the ever evolving world of higher education, effective leaders are required at all levels of our organisations.
Emerging leaders lead in the middle of an organisation, with responsibility for delivering aspects of an institution’s mission, vision and strategy. Their roles are wide-ranging, they work with colleagues at all levels, striving to deliver an enhanced student experience, assuring academic quality and contributing (sometimes delivering) key aspects of their provider’s strategic plan.
Emerging leaders find themselves sitting on committees, representing others, and championing particular topics, having listened to the views of their teams. For some these are new experiences, requiring support and encouragement from peers and senior leaders to embrace the opportunities and challenges.
These colleagues are often leaders of a team or group, responsible for delivering not only their personal objectives, but that of the collective group. Emerging in their leadership journey they are often new to people management, navigating the concept of developing others. Their skillset requirement is vast, their teams need them to listen to many voices and views, and synthesise this into priority areas for campaign.
Learning as leaders
Attention must be paid to those embracing leadership roles, ensuring they are supported to develop. There will inevitably be contextualised opportunities and challenges, requiring understanding of the provider, location, and/or disciplinary focus. Leaders must swiftly understand the context in which they operate, previous developments in topical matters, and the drivers of various stakeholders. We must make space for leaders to learn, providing opportunity to develop.
Emerging leaders learn through observation of senior or more established leaders, modelling behaviours and approaches, through peer networking, and crucially through experience. At different times, in different circumstances, the most beneficial learning opportunities will vary. Emerging leaders will be adaptable, recognising their own developmental need, seeking support and input based on their growing networks, and reflect on their own experiences as part of the learning journey.
Space and encouragement are needed to explore and experience leadership qualities, styles and approaches. Important qualities for all leaders in HE are highlighted here by Shân Wareing: curiosity, confidence, team work, clarity in complexity, and fearlessness.
Not as easy as it sounds
While they are learning to lead, their university requires understanding, interpretation and application of activity to ensure delivery of strategic priorities – which, as we know, aren’t always aligned to the voices and views they are being asked to represent.
Representing the views of others can be challenging, especially when a range of views need collating and presenting back to university management or the team from which they came. Colleague feedback provides leaders with the thoughts and opinions of those around them, through listening to what is being shared – and what isn’t.
Emerging leaders have to synthesise great volumes of information, pulling out the very core of an issue, articulating this back to others, making strategy understandable. Collating and considering the voices of others is important, but critically, as we know from experiences with students, we must keep those who have contributed informed about what may happen next as a result of their engagement. This can empower communities to recognise input, and demonstrates an appreciation of the value of shared views.
The views of colleagues do not always align to strategy or intended direction. In this space leaders develop heightened negotiation and articulation skills, an ability to represent strategic drivers as the mechanism for change, whilst recognising an interconnected web of views and opinions. Often responsible for the support and welfare of colleagues, they are mindful of the impact of decisions and actions on others.
Developed with experience is the ability to identify where and when swift intervention is required, or when a longer-term more measured approach is needed. Uncertainties, questions and challenges surround daily life. There are times when action is required without full knowledge of a situation, confidence and the support of your surrounding team are critical when the occasion arises.
Significant transformation
It’s widely recognised that higher education has experienced significant transformation in recent years. Emerging leaders in our sector must recognise what has gone before and seek to make the most of the opportunities and challenges to come. Transformation can be invigorating, but it also brings uncertainty, and if poorly managed can cause greater uncertainty, leading to more challenges, and so the cycle continues.
To avoid this, Catherine Moran summarises the skills required in three key principles for academic leadership. Leaders must be aware of what they are aiming for, and recognise it when achieved. Emerging leaders will develop the ability to be “present” in relationships with others, drawing on authentic skills of listening and inclusivity. And once a decision is reached, emerging leaders need to be accountable.
Emerging leaders play a vital role in HE, and must be supported to develop appropriate skills, attributes and behaviours. They are delivering strategic impact, leading teams, and enhancing the student and staff experience – let’s take a moment to ensure all those in leadership roles have the opportunity to develop and grow.
The author has written this piece as an emerging leader who has participated in Minerva’s Emerging Leadership Programme, and wishes to acknowledge the support and guidance received from Mary Stuart, Kerry Shepherd, Ben Tucker, and fellow programme participants, in shaping their emerging leadership journey.
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The Fight for Democracy in America (CUNY School of Labor and Urban Studies)
Fri. March 7 — 12:00pm-1:30pm:
“From Multiracial Democracy to Multiracial Fascism?:
What is the Future of the American Experiment?”
Guest Speakers:
Alexis McGill Johnson (she/her) – President and CEO,
Planned Parenthood Federation; Planned Parenthood Action Fund
Eric Ward (he/him) – Executive Vice President, Race Forward
Dorian Warren (he/him) – Co-President, Center for Community Change; Community Change Action
Moderator:
Alethia Jones (she/her) – Director, Civic Engagement and Leadership Development, CUNY School of Labor and Urban Studies
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A surge of DEI cuts hits colleges across the US
This audio is auto-generated. Please let us know if you have feedback.Recent attacks on diversity, equity and inclusion have rocked the higher education sector, with the Trump administration ratcheting up the conservative-led fight against those efforts.
President Donald Trump has signed multiple executive orders aimed at eliminating DEI across higher education and other sectors.
More recently, the U.S. Department of Education issued guidance barring colleges from weighing race in any decision-making or promoting diversity efforts. The letter — which used broad language and stirred confusion among colleges — triggered immediate backlash from free speech and faculty groups.
The department gave colleges until Friday to comply or risk losing their federal funding.
Higher education groups have challenged the legality of the directives from both the White House and the Education Department.
A federal judge temporarily blocked major portions of Trump’s anti-DEI executive orders last week. And the American Federation of Teachers, one of the largest unions in the higher education sector, sued the Education Department over its guidance.
But with no clear outcome, the following colleges are stripping down their diversity efforts to avoid endangering their funding.
Ohio State University
Ohio State University said Thursday it will eliminate its DEI offices and programming effective Friday. The state flagship plans to close its Office of Diversity and Inclusion and discontinue services at its Center for Belonging and Social Change less than 24 hours after announcing the change.
The move will result in job cuts, though Ohio State did not specify how many.
“The federal government has signaled its intent to enforce guidance invalidating the use of race in a broad range of educational activities, including by withdrawing federal dollars that are so important to our student, academic and operational success,” Ohio State President Ted Carter wrote in a letter to students and employees.
In addition to federal forces, the university faces anti-DEI efforts from the Ohio Legislature. The Republican-controlled body is weighing a massive higher education bill that would, among other things, ban the state’s public colleges from having DEI offices or taking positions on “controversial” topics, such as climate or immigration policies, DEI, or abortion.
“Here in Ohio, a bill barring DEI is also making its way through the legislature, and the Attorney General of Ohio – our statutory counsel – has advised us that his office concurs with the federal government’s position regarding the use of race in educational activities,” Carter said.
The university’s Office of Academic Affairs will continue to offer the Young Scholars Program and the Morrill Scholarship Program with modified eligibility. The former is currently open to low-income, first generation students, while the latter is open to students “actively engaged in diversity-based leadership, service, and social justice activities,” according to their web pages.
The university will also rename its Office of Institutional Equity as the Office of Civil Rights Compliance “to more accurately reflect its work,” according to Carter.
“Our goal is to ensure that Ohio State continues to be a place where all are welcomed and treated with respect, while following the letter and spirit of the laws and regulations that govern us,” he said.
Ohio State leaders announced earlier this month they were evaluating the university’s roles and DEI work so they could “make changes if state or federal law requires it or if we decide a different approach is in the university’s best interests.”
The cuts to DEI will not reduce current student scholarships or financial aid, Carter said Thursday. Ohio State will offer alternative jobs to affected student employees.
The University of Cincinnati
The University of Cincinnati is stuck in limbo — its president announced a complete dissolution of the public institution’s DEI efforts before appearing to walk back the announcement just days later.
On Feb. 21, President Neville Pinto said the university would eliminate all DEI initiatives to comply with one of Trump’s executive orders and the Education Department’s guidance.
“It is untenable to operate as if noncompliance with these directives is an effective option,” Pinto wrote in a community letter. “Given this new landscape, Ohio public and federally supported institutions like ours have little choice but to follow the laws that govern us.”
Pinto said at the time that the University of Cincinnati was reviewing its jobs, programming and projects to eliminate DEI aspects. The institution had also begun removing “references to DEI principles” from its web presence and communications.
“I recognize that these decisions are weighty, and these actions are a departure from decades of established practice within academic communities,” Pinto wrote. “I also continue to ask for your patience and understanding as we do the hard work that will be required to unwind many years of DEI efforts under an extremely compressed timeline.”
The decision sparked multiple days of protests from students, faculty and staff.
According to local news sources, Pinto told protesters at the university’s Feb. 25 board of trustees meeting that all DEI-related programming would continue until final decisions had been made regarding the proposed state legislation and Trump’s executive orders.
The University of Pennsylvania
The University of Pennsylvania has recently scrubbed references to DEI from its offices, websites and policies, as well as the phrase “affirmative action.”
The Ivy League institution renamed its “Equal Opportunity and Affirmative Action Policy” to its “Policy on Equal Opportunity.”
A previous version of the policy said “Diversity is prized at Penn as a central component of its mission and helps create an educational and working environment that best supports the University’s commitment to excellence in teaching, research, and scholarship.”
The current version does not reference diversity, instead saying: “The University of Pennsylvania’s special character is reflected in the wide variety of backgrounds, experiences, and perspectives of the Penn community.”
The university also retitled its main inclusion website as “Belonging at UPenn,” replacing “Diversity and Inclusion.” Beginning Feb. 22, diversity.upenn.edu redirected to belonging.upenn.edu.
One of the university’s student resource centers, previously known as The Office of Affirmative Action and Equal Opportunity Programs, is now called the Office of Equal Opportunity Programs.
Several schools and departments within UPenn — including its schools of medicine, design, communications and law — have also removed or replaced references to DEI from their web presences, according to The Daily Pennsylvanian, the university student-led newspaper.
Philadelphia lawmakers met with university leaders this week but two walked out after they took issue with college officials’ explanations on why UPenn had reversed its stance on DEI, according to WHYY.
Ivy Tech Community College
In Indiana, Ivy Tech Community College announced it will close its DEI programs and offices on March 12, following Trump’s executive orders.”
Ivy Tech President Sue Ellspermann said the college relies largely on state and federal funding, citing pending policies at both levels of government when announcing the forthcoming closures, according to a copy of her letter obtained by WTHI.
“While state laws and federal actions are not yet finalized, the College is acting now to protect our federal and state funding so we can ensure uninterrupted services and provide ample time for adjustment in our operations,” she said.
Affected college employees will receive career support services and will be “encouraged to apply for open positions in the College,” according to Ellspermann.
The soon-to-be closed office promotes “cultural and intellectual diversity” and hosts events for cultural heritage months, including for Women’s History Month, Black History Month, LGBTQ+ History Month and Native American Heritage Month, according to Ivy Tech’s website.
The University of Alaska
Regents for the University of Alaska ordered the system to scrub all references to diversity, equity, inclusion “or other associated terms” from its communications and programs, including websites and job titles. The Feb. 21 directive cited Trump’s executive orders against DEI.
The regent vote was nearly unanimous, with the only dissent coming from the board’s student member, Alaska Public Media reported.
In a recent op-ed in the Anchorage Daily News, the leadership of the University of Alaska Faculty Alliance called the regents’ decision “rash and censorious” and noted that the board’s approved meeting agenda did not give the public notice of the anti-DEI motion.
“This unilateral decision undermines our universities’ respective strategic plans that form the foundation for our accreditations,” the chairs wrote. “A decision without public process belittles the dedication and labor of those who openly collaborated to create these plans.”
The alliance also criticized the ban’s broad language, saying it gave regents free reign to expand the list of prohibited words.
The University of Iowa
Amid federal and state pressures, the University of Iowa has eliminated some of its living learning communities — residential programs allowing on-campus students to live in groups based on identity, degree program or common interest.
The university will not offer living learning communities for Black students, Latinx students and LGBTQ+ students during the 2025-2026 academic year, according to its website. University officials confirmed to The Gazette that it will not offer those three living learning communities going forward but declined to comment further.
In July, a new state law will take effect banning Iowa’s three public universities from funding or maintaining DEI offices. And back in 2023, the Iowa Board of Regents — which oversees the universities — ordered them to cut all DEI efforts not required to comply with the law or accreditation standards.
On Feb. 24, the president of the University of Iowa, Barbara Wilson, told lawmakers that the college has complied with their DEI ban.
“We’ve closed offices, we’ve gotten rid of every DEI committee in every department across every college,” she said, according to The Gazette. “We have retained a central office, but we’ve eliminated about 11 positions in that central office, and it’s focused primarily on civil rights, access and opportunity.”
Wilson also said she couldn’t “imagine getting rid of the word diversity” but would do so if directed to by lawmakers.
Des Moines Area Community College
Des Moines Area Community College in Iowa has paused its DEI efforts, including diversity-focused trainings and task forces, according to the Des Moines Register. It also removed information regarding its diversity commission from its website, as of Jan. 27.
Like the University of Iowa, the public college has faced increasing pressure from conservative state lawmakers to roll back diversity efforts.
On Feb. 26, the Iowa House’s higher education committee advanced a bill that would prohibit community colleges from having DEI offices, like their university counterparts. The committee chair acknowledged the state’s community colleges are already complying with the proposed standard but said lawmakers should codify the rule, according to the Iowa Capital Dispatch.
Grand View University
Grand View University, in Iowa, canceled its plans for International Women’s Day set for March 8 amid changing federal and state anti-diversity policies, according to Axios. A spokesperson for the private college said Grand View wants to ensure its events aren’t exclusionary.
Iowa lawmakers are also taking aim at private colleges’ DEI efforts.
On Feb. 26, the House’s higher education committee advanced a bill that would ban DEI offices at the state’s private colleges, unless required by federal law or accreditation. If the legislation passes, those that don’t comply could lose access to the Iowa Tuition Grant program, which offers scholarships to students enrolled in private colleges in the state.
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Physicist Develops New Cancer-Killing Technology, LANT
Dr. Hadiyah-Nicole Green has developed a novel cancer-killing technology, Laser-Activated NanoTherapy (LANT), that is of high clinical relevance in the field of oncology.
In 2003, Dr. Hadiyah-Nicole Green graduated with a B.S. in Physics from Alabama A&M University with a plan to revolutionize the way consumers receive cable TV and internet. She had diligently prepared herself for her future career in fiber optics and optical communication, and she was excited to finally be on her way. The day after graduation, Dr. Green’s aunt, who had raised her along with her two older brothers, disclosed that she had cancer.
“She told us she had ‘woman’s cancer,’ which usually means cervical or ovarian cancer, and was only given three months to live,” Dr. Green recalled. “She also said she’d rather die than experience the side effects of chemo or radiation treatments.” As Dr. Green nursed her aunt through the ravages of the disease, she remembers thinking, “We have satellites in outer space that can tell whether a dime on the ground is face up or face down, but we can’t treat a tumor just at the site of the tumor? That doesn’t make sense.”
Three months after her aunt died, Dr. Green’s uncle, her late aunt’s husband, was diagnosed with esophageal cancer and given up to six months to live. Dr. Green was the primary caregiver for her uncle while he received the conventional treatments of radiation and chemo. Although with treatment, Dr. Green’s help, and God’s grace, her uncle lived 10 years past his original prognosis, Dr. Green saw his body bear the brunt of the treatment’s brutal side effects.
“I watched him wither down to nothing after losing 150 pounds,” Dr. Green said. “He lost all of his hair on his head, his eyebrows, and his eyelashes, and his skin looked like it had been barbequed.” Seeing her aunt and uncle suffer at the hands of cancer and cancer treatments inspired Dr. Green to dedicate her life to developing innovative and more humane ways to attack and destroy cancer. In 2005, she enrolled in the physics Ph.D. program at the University of Alabama in Birmingham (UAB) to develop this inspired cancer treatment using lasers and nanotechnology.
A cure without suffering
Cancer has impacted most of us. While cancer that is detected early has a high cure rate, nearly 10 million people still die from cancer each year worldwide. Even with the best care, any of us — our family, friends, or colleagues — can be subjected to ineffective treatments, harsh side effects, lengthy treatment durations, prohibitive costs, and limited accessibility. Now, there’s a better way!
Dr. Green developed a novel cancer-killing technology, Laser-Activated NanoTherapy (LANT), that is of high clinical relevance in the field of oncology. LANT directly addresses the urgent yet unmet global need for more effective treatment options for millions of people with difficult-to-treat cancers. LANT is designed as a minimally invasive, curative treatment for solid tumors that induces site-specific (not cell type-specific) cellular death and tumor regression precisely at the site of laser activation. The peer-reviewed, preclinical in vivo LANT data showed complete tumor regression with clear tumor margins and healed skin in just 15 days after a single, 10-minute treatment without surgery, chemotherapy, radiation, or observed side effects. Because its mechanism of action is based on physics instead of biology, LANT is a platform therapy designed to have clinical indications for a variety of difficult-to-treat solid tumors, such as brain, pancreatic, breast, prostate, and head and neck cancers.
Dr. Green founded the Ora Lee Smith Cancer Research Foundation, a cancer nonprofit, to keep the technology she developed affordable for all. The Ora Lee Smith Cancer Research Foundation is on a mission to change the way cancer is treated and reduce cancer patient suffering by providing a treatment that is accessible, affordable, and effective. Limited by funding, not technological advancements, the Ora Lee Foundation is ready to move LANT beyond the laboratory and into humans with tax-deductible donations. When you support the Ora Lee Smith Cancer Research Foundation, your donations will help ensure Dr. Green’s research comes to life by helping to fund human clinical trials, taking this tech from the lab to the living.
The future of cancer research
Dr. Green acknowledges that none of us are islands; we all stand on the shoulders of those who came before us. As such, she pays it forward by creating opportunities in her research laboratory and nonprofit for women and students in STEM to grow their research and personal skills. She also advises her mentees and trainees on educational, career, and life strategies.
“My advice to young women interested in pursuing research careers would be to excel in your coursework and obtain summer and work-study research experiences to help confirm or narrow your scientific interests,” Dr. Green said. “Put your best into everything that you do, so that when opportunities come, you will be prepared. Everyone has a divine purpose for being on the planet. Channel your joy or pain and the things that make you happy or angry, into your purpose or to help you identify your purpose.”
Dr. Green says, “I turned my pain into passion and used the loss of my loved ones to cancer to develop new ways to fight cancer. I also channeled the skills I built as the president of different organizations in college into my position as the founder of my nonprofit.” If you haven’t found your purpose, Dr. Green recommends supporting something or someone you believe in, and by dedicating time and effort to something bigger than yourself, you will gain experience and skills that may be the investment needed to achieve your own success.
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Shifting From Bitter to Sweet: A Woman’s Health Goal
The term “bittersweet” isn’t one typically associated with healthcare, but for many women today, their healthcare journeys are just that.
Irene O. Aninye, Ph.D.
Chief Science Officer, Society for Women’s Health Research (SWHR)
A woman walks out of her doctor’s office. She sits down — in the lobby, in her car, on a bench — to process what she just heard. She thinks to herself, “They said I have…”
Insert endometriosis or lupus or psoriatic arthritis or narcolepsy or persistent depressive disorder. This is just a short list of chronic health conditions for which many women experience significant delays in diagnosis, and often much longer delays than men.
She feels fearful. She feels confused. She feels overwhelmed. But, she also feels hope and relief, because today’s visit was different. After multiple trips to urgent care, months-long wait times to see different specialists, countless days that turned into years going to work while feeling unwell, and surmounting out-of-pocket costs for medications that were unable to manage her symptoms, today, she finally received an accurate diagnosis — a name to associate with her experience. Now there is hope for a pathway to improve not only her health but also her quality of life.
The importance of women in research
Many factors contribute to the diagnostic delays women experience, including insufficient research funding and prioritization of women’s health issues; historical exclusion of women from medical research; and societal norms and stigma that hinder access and engagement with the healthcare system. As such, preventive care and interventions that address the unique health needs of women are lacking. It is only since 1993, when public law established a precedent mandating the inclusion of women and minoritized populations in clinical research, that the tide for women’s health research began to systemically shift.
Now, over 30 years later, many still fail to realize how essential women are to every corner of the healthcare ecosystem. Women are needed as investigators toward research discovery just as much as they must lead care delivery as healthcare providers. An often-minimized role for women in research, however, is their engagement as participants in clinical studies. Including women in research allows us to effectively study sex differences and learn more about diseases in both men and women alike.
Without the appropriate and safe inclusion of women in medical research, our medications, interventions, clinical guidelines, and basic understanding of human health are compromised, and we are left with persistent knowledge gaps and disparities in health outcomes between women and men. These disparities exist for disease prevalence, time to diagnosis, treatment efficacy, health span, and quality of life. For women of color, women living in rural communities, women at older ages, and pregnant populations, the unknowns about how to effectively diagnose and provide care are compounded in unacceptable proportions.
We must improve
We must include women in research and study sex differences to truly understand the nuances of health and disease. We must empower women to engage the healthcare system at all levels to ensure their best health. We must work with communities safely and transparently, sharing findings and solutions with those who participated in the research. We must eliminate the barriers women experience accessing quality and innovative care. We must continue to invest widely and often in women’s health research to sustain momentum in our progress.
I’ll leave you with this: A clinical study that passively enrolls women does not necessarily meet the standard of inclusivity. If a woman’s participation is not recognized and sex differences are not appropriately reflected in the data analysis, the scientific and healthcare ecosystem will continue to lag. We all have to commit attention and care to valuably including women in research, for as long as it takes to close the knowledge gaps, eliminate diagnostic delays, and empower patients in their care. We have to prioritize resources to advance women’s health until the health of every person is improved. We do this work for ourselves, and we do this work for the woman walking into the doctor’s office right now.
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U.S. Department of Education Launches “End DEI” Portal (US Department of Education)
WASHINGTON – Today, the U.S. Department of Education launched EndDEI.Ed.Gov, a public portal for parents, students, teachers, and the broader community to submit reports of discrimination based on race or sex in publicly-funded K-12 schools.
The secure portal allows parents to provide an email address, the name of the student’s school or school district, and details of the concerning practices. The Department of Education will use submissions as a guide to identify potential areas for investigation.
“For years, parents have been begging schools to focus on teaching their kids practical skills like reading, writing, and math, instead of pushing critical theory, rogue sex education and divisive ideologies—but their concerns have been brushed off, mocked, or shut down entirely,” said Tiffany Justice, Co-Founder of Moms for Liberty. “Parents, now is the time that you share the receipts of the betrayal that has happened in our public schools. This webpage demonstrates that President Trump’s Department of Education is putting power back in the hands of parents.”