Category: autism

  • Arizona Autism Charter School Founder Tapped as DOE Special Education Chief – The 74

    Arizona Autism Charter School Founder Tapped as DOE Special Education Chief – The 74

    The founder and executive director of a network of Arizona charter schools serving autistic children has been named the U.S. Education Department’s deputy assistant secretary for special education and rehabilitative services. Education Secretary Linda McMahon made the announcement while touring the Arizona Autism Charter Schools’ Phoenix location.

    Diana Diaz-Harrison, whose son is autistic, said that in her new job she hopes to continue her efforts to help others launch autism charter schools throughout the country. Her schools, she said in remarks captured on video by AZ Central, are a testament to what happens “when parents like me are empowered to create solutions.”

    “My vision is to expand school choice for special needs families — whether through charter schools, private options, voucher programs, or other parent-empowered models,” she said in a statement to The 74. .

    The five-school network uses a controversial intervention that attempts to train children to appear and behave like their neurotypical peers. Created by the researcher behind LGBTQ conversion therapy, applied behavior analysis, or ABA, is widely depicted as the gold standard despite scant independent evidence of its effectiveness and mounting research documenting its harms. 

    Diaz-Harrison opened the network’s first school in 2014 as a free, public alternative to private schools for autistic children, which are popular in Arizona but typically charge tens of thousands of dollars a year in tuition. Her Arizona charter schools are a 501(c)3 nonprofit financed by state and federal per-pupil funds. ABA is specifically endorsed by Arizona education officials as a strategy to use with autistic students.

    In the time since those charters opened, ABA has grown to be a national, multi-billion-dollar industry, with for-profit companies tapping public and private insurance to pay for as much as 40 hours a week of one-on-one therapy. The intervention uses repeated, rapid-fire commands that bring rewards and punishments to change a child’s behavior and communication style.

    A 74 investigation last year showed that most data supporting ABA’s effectiveness is drawn from research conducted by industry practitioners. Independent analyses, including a years-long U.S. Department of Defense review, found little evidence the intervention works. Former patients who underwent the therapy as children reported severe, lasting mental health effects, including PTSD.

    Diaz-Harrison told The 74 the therapy is both valuable and sought-after. “For the autism community, specifically, many families seek schools that integrate positive behavioral strategies,” she says. “The evidence supporting behavioral therapy is extensive and well-established. It has been endorsed by the U.S. surgeon general and the American Academy of Pediatrics as an effective, research-backed approach for individuals with autism.”

    During her visit, McMahon told students and staff she was eager to tell President Donald Trump about the schools. “He doesn’t believe any child, whether they have neuro-difficulties or any other problems, should be trapped in a school and not have the facilities that they need,” she said. 

    Since Trump’s second inauguration, he has issued numerous orders that have alarmed disability advocates and the autistic community. Though both edicts contradict longstanding federal laws, in March he ordered the closure of the Education Department and said responsibility for special education will be transferred to the U.S. Department of Health and Human Services.

    About half of the Education Department’s staff has been fired, including most of the people responsible for investigating what had been a backlog of some 6,000 disability discrimination complaints. Though it’s unclear whether Trump and McMahon may legally disregard special education funding laws and allow states to spend federal dollars as they see fit, both have said they favor giving local officials as much decision-making power as possible.

    Meanwhile, HHS Secretary Robert F. Kennedy Jr. has stoked fear in the autistic community by announcing a new effort to tie autism to vaccines or other “environmental toxins” — a hypothesis discredited by dozens of studies. The man he appointed to head the study has been cited for practicing medicine without a license and prescribing dangerous drugs to autistic children. 

    Last week, the new head of the National Institutes of Health announced that an unprecedented compilation of medical, pharmaceutical and insurance records would be used to create an autism “disease registry” — a kind of list historically used to sterilize, institutionalize and even “euthanize” autistic people. HHS later walked back the statement, saying the database under construction would have privacy guardrails.

    Among other responsibilities, the offices Diaz-Harrison will head identify strategies for improving instruction for children with disabilities and ensure that as they grow up, they are able to be as independent as possible. The disability community has raised concerns that the administration is retreating from these goals.   

    Advocates have said they fear the changes pave the way for a return to the practice of separating students with disabilities in dedicated special ed classrooms rather than having them attend class with typically developing peers. The Individuals with Disabilities in Education Act guarantees special education students the right to instruction in the “least restrictive environment” possible.          

    Families’ preferences vary widely, with some parents of autistic children refusing any form of behavior therapy, while others want their kids in settings with children who share their needs. Many insist on grade-level instruction in general education classrooms 

    Diaz-Harrison has a master’s degree in education and worked as a bilingual teacher in California early in her career. From the late 1990s until she began supporting her son full time, she worked as a public relations strategist and a reporter and anchor for the Spanish-language broadcast network Univision. 

    In 2014, frustrated with her son’s school options, she organized a group of parents and ABA providers who applied for permission to open what was then a single K-5 school serving 90 children. The network now has about 1,000 students in all grades and features an online program. 

    At the end of the 2023-24 academic year, 9% of the network’s students scored proficient or highly proficient on Arizona’s annual reading exam, while 4% passed the math assessments.      

    In December 2022, the network won a $1 million Yass Prize, an award created by Jeff and Janine Yass. The billionaire investors have a long track record of donating to Republican political candidates and organizations that support school choice. 

    One of the award’s creators, Jeanne Allen, is CEO of the Center for Education Reform. The center nominated Diaz-Harrison for the federal role. 

    Yass award winners were featured at the 2023 meeting of the American Legislative Exchange Council, or ALEC, a conservative forum where state lawmakers are given model bills on education and other policies to introduce in their respective statehouses. 

    Diaz-Harrison has partnered with a Florida autism school to create a national charter school accelerator program to help people start schools like hers throughout the country. She told The 74 the effort has so far supported teams of hopeful school founders from Louisiana, Texas, Florida, Alabama and Nevada. 

    Parents of young autistic children and autistic adults often disagree about ABA. Told by their pediatrician or the person who diagnosed their child as autistic that they have a narrow window in which to intervene, families fight to get the therapy. Adults who have experienced it, however, report lasting trauma and have lobbied for research — much of it now at risk of being defunded by Kennedy — into more effective and humane alternatives.


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  • A virtual reality, AI-boosted system helps students with autism improve social skills

    A virtual reality, AI-boosted system helps students with autism improve social skills

    Key points:

    This article and the accompanying image originally appeared on the KU News site and are reposted here with permission.

    For more than a decade, University of Kansas researchers have been developing a virtual reality system to help students with disabilities, especially those with autism spectrum disorder, to learn, practice and improve social skills they need in a typical school day. Now, the KU research team has secured funding to add artificial intelligence components to the system to give those students an extended reality, or XR, experience to sharpen social interactions in a more natural setting.

    The U.S. Office of Special Education Programs has awarded a five-year, $2.5 million grant to researchers within KU’s School of Education & Human Sciences to develop Increasing Knowledge and Natural Opportunities With Social Emotional Competence, or iKNOW. The system will build on previous work and provide students and teachers with an immersive, authentic experience blending extended reality and real-world elements of artificial intelligence.

    iKNOW will expand the capabilities of VOISS, Virtual reality Opportunity to Integrate Social Skills, a KU-developed VR system that has proven successful and statistically valid in helping students with disabilities improve social skills. That system contains 140 unique learning scenarios meant to teach knowledge and understanding of 183 social skills in virtual school environments such as a classroom, hallway, cafeteria or bus that students and teachers can use via multiple platforms such as iPad, Chromebooks or Oculus VR headsets. The system also helps students use social skills such as receptive or expressive communication across multiple environments, not simply in the isolation of a classroom.

    IKNOW will combine the VR aspects of VOISS with AI features such as large language models to enhance the systems’ capabilities and allow more natural interactions than listening to prerecorded narratives and responding by pushing buttons. The new system will allow user-initiated speaking responses that can accurately transcribe spoken language in real-time. AI technology of iKNOW will also be able to generate appropriate video responses to avatars students interact with, audio analysis of user responses, integration of in-time images and graphics with instruction to boost students’ contextual understanding.

    “Avatars in iKNOW can have certain reactions and behaviors based on what we want them to do. They can model the practices we want students to see,” said Amber Rowland, assistant research professor in the Center for Research on Learning, part of KU’s Life Span Institute and one of the grant’s co principal investigators. “The system will harness AI to make sure students have more natural interactions and put them in the role of the ‘human in the loop’ by allowing them to speak, and it will respond like a normal conversation.”

    The spoken responses will not only be more natural and relatable to everyday situations, but the contextual understanding cues will help students better know why a certain response is preferred. Rowland said when students were presented with multiple choices in previous versions, they often would know which answer was correct but indicated that’s not how they would have responded in real life.

    IKNOW will also provide a real-time student progress monitoring system, telling them, educators and families how long students spoke, how frequently they spoke, number of keywords used, where students may have struggled in the system and other data to help enhance understanding.

    All avatar voices that iKNOW users encounter are provided by real middle school students, educators and administrators. This helps enhance the natural environment of the system without the shortcomings of students practicing social skills with classmates in supervised sessions. For example, users do not have to worry what the people they are practicing with are thinking about them while they are learning. They can practice the social skills that they need until they are comfortable moving from the XR environment to real life.

    “It will leverage our ability to take something off of teachers’ plates and provide tools for students to learn these skills in multiple environments. Right now, the closest we can come to that is training peers. But that puts students with disabilities in a different box by saying, ‘You don’t know how to do this,’” said Maggie Mosher, assistant research professor in KU’s Achievement & Assessment Institute, a co-principal investigator for the grant.

    Mosher, a KU graduate who completed her doctoral dissertation comparing VOISS to other social skills interventions, found the system was statistically significant and valid in improving social skills and knowledge across multiple domains. Her study, which also found the system to be acceptable, appropriate and feasible, was published in high-impact journals Computers & Education and Issues and Trends in Learning Technologies.

    The grant supporting iKNOW is one of four OSEP Innovation and Development grants intended to spur innovation in educational technology. The research team, including principal investigator Sean Smith, professor of special education; Amber Rowland, associate research professor in the Center for Research on Learning and the Achievement & Assessment Institute; Maggie Mosher, assistant research professor in AAI; and Bruce Frey, professor in educational psychology, will present their work on the project at the annual I/ITSEC conference, the world’s largest modeling, simulation and training event. It is sponsored by the National Training & Simulation Association, which promotes international and interdisciplinary cooperation within the fields of modeling and simulation, training, education and analysis and is affiliated with the National Defense Industrial Association.

    The research team has implemented VOISS, available on the Apple Store and Google Play, at schools across the country. Anyone interested in learning more can find information, demonstrations and videos at the iKNOW site and can contact developers to use the system at the site’s “work with us” page.

    IKNOW will add resources for teachers and families who want to implement the system at a website called iKNOW TOOLS (Teaching Occasions and Opportunities for Learning Supports) to support generalization of social skills across real-world settings.

    “By combining our research-based social emotional virtual reality work (VOISS) with the increasing power and flexibility of AI, iKNOW will further personalize the learning experience for individuals with disabilities along with the struggling classmates,” Smith said. “Our hope and expectation is that iKNOW will further engage students to develop the essential social emotional skills to then apply in the real world to improve their overall learning outcomes.”

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