- Dr Elizabeth Morrow is Research Consultant, Senior Research Fellow Royal College of Surgeons in Ireland, & Public Contributor to the Shared Commitment to Public Involvement on behalf of National Institute for Health and Care Research.
- Professor Tushna Vandrevala is Professor of Health Psychology, Kingston University.
- Professor Fiona Ross CBE is Professor Emerita Health and Social Care Kingston University, Deputy Chair Westminster University Court of Governors & Trustee Great Ormond Street Hospital Charity.
Commitment and Motivation for Inclusive Research
The commitment to inclusivity in UK research cultures and practices will endure despite political shifts abroad and continue to thrive. Rooted in ethical and moral imperatives, inclusivity is fundamentally the right approach. Moreover, extensive evidence from sources such as The Lancet, UNESCO and WHO highlights the far-reaching benefits of inclusive research practices across sectors like healthcare and global development. These findings demonstrate that inclusivity not only enhances research quality but also fosters more equitable outcomes.
We define ‘inclusive research’ as the intentional engagement of diverse voices, communities, perspectives, and experiences throughout the research process. This encompasses not only who conducts the research but also how it is governed, funded, and integrated into broader systems, such as policy and practice.
Beyond higher education, corporate leaders have increasingly embraced inclusivity. Research by McKinsey & Company shows that companies in the top quartile for gender diversity are 25% more likely to outperform their peers in profitability, while those leading in ethnic diversity are 36% more likely to do so. This clear link between inclusivity, innovation, and financial success reinforces the value of diverse teams in driving competitive advantage. Similarly, Egon Zehnder’s Global Board Diversity Tracker highlights how diverse leadership enhances corporate governance and decision-making, leading to superior financial performance and fostering innovation.
Inclusion in research is a global priority as research systems worldwide have taken a ‘participative turn’ to address uncertainty and seek solutions to complex challenges such as Sustainable Development Goals. From climate change to the ethical and societal implications of Artificial Intelligence (AI), inclusive research is a track that ensures that diverse perspectives shape solutions that are effective, fair and socially responsible.
Take the example of AI and gender bias – evidence shows that women are frequently not included in technology research and are underrepresented in data sets. This creates algorithms that are biased and can have negative consequences of sensitivity, authenticity, or uptake of AI-enabled interventions by women. Similar biases in AI have been found for other groups who are often overlooked because of their age, gender, sexuality, disability, or ethnicity, for example.
Accelerating Inclusion in UK Research
A recent horizon scan of concepts related to the UK research inclusion landscape indicates domains in which inclusive research is being developed and implemented, illustrated by Figure 1.
Inclusion is being accelerated by the Research Excellence Framework (REF) 2029, with a stronger focus on assessing People, Culture, and Environment (PCE). REF 2029 emphasises the integration of EDI considerations across research institutions, with a focus on creating equitable and supportive cultures for researchers, participants and communities. The indicators and measures of inclusion that will be developed and used are important because they can encourage diversity of perspectives, knowledge, skills and worldviews into research processes and institutions, thereby increasing relevance and improved outcomes. All units of assessment and panels involved in the REF process will have guidance from the People and Diversity Advisory Panel and the Research Diversity Advisory Panel. This means that inclusion will develop in both the culture of research institutions and the practices that shape research assessment.
The National Institute for Health Research, which is the largest funder of health and social care research, has pioneered inclusion for over 30 years and prioritises inclusion in its operating principles (see NIHR Research Inclusion Strategy 2022-2027). NIHR’s new requirements for Research Inclusion (RI) will be a powerful lever to address inequalities in health and care. NIHR now requires all its domestic commissioned research to address RI at the proposal stage, actively involve appropriate publics, learn from them and use this learning to inform impact strategies and practices.
Given the learning across various domains, we ask: How can the broader UK system share knowledge and learn from the setbacks and successes in inclusion, rather than continually reinventing the wheel? By creating space in the system between research funders and institutions to share best practices, such as the Research Culture Enablers Network, we can accelerate progress and contribute to scaling up inclusive research across professional groups and disciplines. There are numerous examples of inclusive innovation, engaged research, and inclusive impact across disciplines and fields that could be shared to accelerate inclusion.
Developing Shared Language and Inclusive Approaches
Approaches to building inclusive cultures in research often come with passion and commitment from opinion leaders and change agents. As often happens when levering change, a technical language evolves that can become complex and, therefore, inaccessible to others. For example, acronyms like RI can apply to research inclusion, research integrity and responsible innovation. Furthermore, community-driven research, public and community engagement, and Patient and Public Involvement (PPI) have become synonymous with inclusive research, and such participation is an important driver of inclusion.
The language and practices associated with inclusive research vary by discipline to reflect different contexts and goals. This can confuse rather than clarify and form barriers that possibly get in the way of trust and more effective inclusion strategies and practices. We ask: How can we establish shared understanding, methods of participation, accountability pathways and mechanisms that will promote inclusion in the different and dynamic contexts of UK research?
With over 20 years of experience in the fields of inclusion and equity, like other researchers, we have found that interdisciplinary collaboration, participatory methods, co-production, and co-design offer valuable insights by listening to and engaging with publics and communities on their own terms and territory. An inclusive approach has deepened our understanding and provided new perspectives on framing, methodological development, and the critical interpretation of research.
Final reflection
Key questions to overcome EDI cynicism are: How can we deepen our understanding and integration of intersectionality, inclusive methods, open research, cultural competency, power dynamics, and equity considerations throughout research processes, institutions, and systems? There is always more to learn and this can be facilitated by inclusive research cultures.